Category: For patients

Unrest – a personal documentary by Jennifer BreaUnrest – a personal documentary by Jennifer Brea

The ME/CFS Foundation of South Africa is currently screening the award-winning documentary film, “Unrest”. Synopsis Jennifer Brea is an active Harvard PhD student about to marry the love of her life when suddenly her body starts failing her. Hoping to shed light on her strange symptoms, Jennifer grabs a camera and films the darkest moments […]

Scientist Ron Davis talks about how the Open Medicine Foundation are “fast-tracking” ME/CFS researchScientist Ron Davis talks about how the Open Medicine Foundation are “fast-tracking” ME/CFS research

In this video, published on 3 February 2017, Open Medicine Foundation’s Scientific Advisory Board Director, Ronald Davis, PhD, answers 3 questions on new technology and strategies for “fast-tracking” ME/CFS research. [youtube video=”-bs6_5Ldat4″ width=”700″ height=”420″]

A Poem about ME/CFS: Missing steps – Diane Levy-HelligA Poem about ME/CFS: Missing steps – Diane Levy-Hellig

  MISSING STEPS by Diane Levy-Hellig “I became ill with ME/CFS in 1983. Missing now for over 30 years. Missing from my arts and education career which I loved. Missing from being able to make a difference in the creative lives of many children. Physically present in the life of my family but so often […]

MORE Stories of people reached by the FoundationMORE Stories of people reached by the Foundation

Retha used to love working and studying, she fell ill at 36 and now 14 years later are primarily housebound, she misses a career, wearing nice clothes and shoes, social interaction, being active! “I fell ill at the age of 36 and have been ill for 14 years now. My condition also deteriorated over the […]

A few stories of people with ME/CFS reached by the FoundationA few stories of people with ME/CFS reached by the Foundation

A few stories of people with ME/CFS reached by the Foundation ME/CFS is solitary confinement; missing out on life, living in isolation often in severe financial distress       L – now in her 60’s,was diagnosed in 1991, she was a walker and also did low impact exercising. She misses that every day!   […]

MILLIONS MISSING CAMPAIGN – 27 SEPTEMBER 2016MILLIONS MISSING CAMPAIGN – 27 SEPTEMBER 2016

MEDIA ADVISORY FOR:  Tuesday, September 27, 2016 CONTACT:  Brett Abrams | +1-516-841-1105 | brett@unbendablemedia.com   09/27: Thousands Protest in 24 Cities Worldwide Demanding Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome   #MillionsMissing International Day of Action Urges Public Health Officials to Ramp Up Funding for ME/CFS Research and Clinical Trials   […]